To profoundly impact the course of treatment, diagnosis time, well-being of the families, and the understanding of the impact of Eosinophilic Disease in our nation. We will raise $15,000,000 by the end of 2010 to combat Eosinophilic Disease and related issues in all its forms. By raising money through both grassroots and private donors, we will supply funds for the following four areas:
1. Research – we will provide funding to both study the existing patients and to find new treatment options. We will work with the leading Doctors in the field to determine the most promising and effective course of action.
2. Medical Education – we will educate every Pediatric GI Specialist in the country on the elements of this disease so we can dramatically reduce the diagnosis time. Typically it takes 3-4 years to diagnose. We will help to move that to less than 1 year, with an ideal target of finding a new, less invasive test that will speed that up to months. A secondary target is to educate all Pediatricians through presentations at Medical Schools, conferences, and the like.
3. Family Relief – we will establish a fund for families in need to address the mounting healthcare expenses as well as conference attendance for improved education for the families. It would not be uncommon for a family to be hit with annual expenses in excess of $10,000-25,000 to manage this chronic, lifelong disease. Without health insurance, the expense could easily climb to $75,000 per year or more. For most families, that is not manageable.
4. Awareness – so little is known nationally about this disease and that must change. This will be done through PR and Publicity as well as events that will shine a light on the challenges those with any form of Eos must endure.